Auggie or Augs, as he is known to his close family and friends, was born on a super sunny May 14th in 2007 at NYU Medical Center in full view of the Statue of Liberty. Both August and his father, Michael Angelo Chinchilla, would eventually test positive for Huntington Disease, a devastatingly incurable, hereditary brain disorder for which there is no current ‘effective’ treatment.
The aggressive neurodegenerative disorder causes the affected individuals’ abilities to walk, think, reason and talk to gradually erode until they leave this life. Imagine if ALS, Parkinson’s and Alzheimer’s were all mixed together and multiplied by a thousand and you will begin to see the slow devastation that is Huntington’s Disease.
August, at 8 years young, lives with Early Onset Juvenile Huntington’s Disease, one of the rarest forms of the disease. Currently the only JHD elementary kid enrolled in school in the US, he attends a public Waldorf school in Los Angeles, CA, likes to sing, enjoys playdates, building Legos, sharing stories and loving the world around him. Oh, and he has a thing for Star Wars!